32 / THE RIGHT TO SCIENCE

Towards enhanced global awareness and monitoring of the human right to science

18 – 22 May 2019        Send to printer


Course directors

Sebastian Porsdam Mann, University of Oxford, United States
Stjepan Orešković, University of Zagreb, Croatia
Yvonne Donders, University of Amsterdam, Netherlands
Christine Mitchell, Harvard University, United States
Helle Porsdam, University of Copenhagen, Denmark


Course description:

Despite its significance for scientists and society, the right to science (RtS) has not received the attention it deserves. In this workshop, we wish to explore the history and content of the RtS. We also intend to examine its application to current issues in e.g. personalized medicine and to discuss its implications for science policy. The potential for the advancement of science is considerable, but the RtS also poses challenges. Scientific research depends upon the ability to examine, verify, and apply the findings of others. Increasing protections of intellectual property (IP) and (data) privacy threaten the scientific freedom to access the information necessary for research, especially in low-and-middle-income countries and among disadvantaged populations of high-income countries. In addition, much current scientific funding reflects the priorities of private corporations and their clients. Consequently, research addressing basic scientific questions and the needs of the less well-off makes up an ever-decreasing proportion of scientific efforts. These issues impede scientific progress, causing unnecessary and unjustified suffering. Debates concerning the fairness of these practices often attempt to establish a balance between profit and incentives for manufacturers and individual or public interest in accessing their products. The lack and underutilization of scientific evidence for some areas of policy-making prevent many from enjoying the benefits of scientific progress. Furthermore, the freedom necessary to conduct and disseminate research is sometimes threatened by political conflicts of interest, resulting in important advances being ignored or suppressed. Finally, the RtS will be considered from the perspective of intergenerational justice, taking into account need to ensure that scientific and technological developments contribute to the wellbeing of present and future generations in conformity with the UNESCO Declaration on the Responsibility of the Present Generations Towards Future Generations (1997).

The programme doesn't offer ECTS credits.

For more info please visit official web page.


Course lecturers

Sebastian Porsdam Mann, University of Oxford, United States
Stjepan Orešković, University of Zagreb, Croatia
Roberto Andorno, University of Zürich, Switzerland
Yvonne Donders, University of Amsterdam, Netherlands
Helle Porsdam, University of Copenhagen, Denmark
Valeire J. Bradley, Human Services Research Institute Cambridge, United Kingdom
Christine Mitchell, Harvard University, United States
Mildred Z. Solomon, Harvard University, United States
Erik Parens, The Hastings Center New York, United States
Fionna MacMillan, University of London, United Kingdom
Mathias Mann, Max-Planck-Institut Munchen, Germany
Jason Bobe, Icahn School of Medicine at Mount Sinai, New York, United States


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